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The American College of Chest Physicians (CHEST), the PF Warriors, the Rare Disease Diversity Coalition (RDDC)-a program at the Black Woman's Health Imperative-and the National Association of Community Health Workers (NACHW) announce their collaboration to address idiopathic pulmonary fibrosis (IPF) as a chronic disease on Rare Disease Day 2025.
"Community health workers (CHWs) are frontline professionals who leverage their trust and shared life experiences with patients to help bridge the gap between primary and specialty care and advance system improvements. CHWs' core roles in community health integration, principal illness navigation, and the social determinants of health can mitigate diagnostic delays and optimize outcomes for rare chronic diseases like IPF, which improve health outcomes, especially for underserved communities," says Denise Octavia Smith, CHW, MBA, PN, Executive Director of the NACHW.
Read the full press release bellow:
Press Release
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